"The Centers for Disease Control and Prevention (CDC) is working to improve the lives of people with sickle cell disease (SCD), an inherited blood disorder. Learn about CDC’s SCDC program, and find a suite of online resources that can help you or someone you know live healthy with SCD.
Sickle cell disease (SCD) is a blood disorder present at birth. People with SCD have sickle-shaped red blood cells that stick together and block blood and oxygen from reaching all parts of the body, leading to health problems such as pain, anemia, infections, and stroke. Approximately 100,000 Americans are affected by SCD. CDC is committed to studying SCD to improve the health and care of people with this condition.
The Sickle Cell Data Collection (SCDC) Program
The SCDC program works with teams in the shaded states on the map below to collect and link data from several sources.
The SCDC program, which has been ongoing since 2015, collects health information about people with SCD to study the long-term trends in diagnosis, treatment, and healthcare access for people with SCD in the United States. Currently, there are 11 states participating in the SCDC program. As more resources become available, CDC plans to expand the program to include additional states. The program will help inform policy and healthcare standards to improve and extend the lives of people with SCD.
Learn more about the SCDC program:
- SCDC Program Fact Sheet
- SCDC Surveillance Summary
- SCDC Program Data
- SCDC Publications
- SCDC Policy Memo: Understanding Sickle Cell Disease: CDC’s Role in Surveillance, Education, and Awareness
- The Bloodline Newsletter is a quarterly e-newsletter providing updates about the SCDC Program. Visit the webpage to subscribe..."
Sickle Cell Collection
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