"What is hemophilia?
Hemophilia is an inherited bleeding disorder in which the blood does not clot properly due to a lack of clotting factor proteins in the blood. As a result, people with hemophilia experience excessive bleeding after an injury or trauma, as well as spontaneous bleeding that can occur for no apparent reason.
Why is hemophilia research important?
Hemophilia is a rare disorder that primarily affects men, occurring in about 1 of every 5,000 male births. Women can have hemophilia too, but it is much rarer in this group. People with hemophilia can experience a range of health problems, such as joint disease and inhibitors (antibodies that can make treating hemophilia more challenging), that impact day-to-day activities and affect overall health and quality of life.
Research helps scientists learn more about the health problems and challenges people with hemophilia face to gain insight into how these health problems can be prevented or reduced to improve health and quality of life.
CDC’s bleeding disorder surveillance work
Historically, one challenge to hemophilia research has been the lack of uniform health data on people living with this condition. To address this challenge, CDC collaborated with federally funded hemophilia treatment centers (HTCs) to create a national public health surveillance project called the Universal Data Collection (UDC) system. To expand upon the work of the UDC system, which concluded in 2011, CDC developed the Community Counts program..."Bleeding disorders
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