CDC’s New Muscular Dystrophy Research

"CDC's MD STARnet (Muscular Dystrophy Surveillance Tracking and Research Network) is the only population-based muscular dystrophy tracking program in the United States. Data from the five participating MD STARnet locations document:

• How common each type of muscular dystrophy is in the population.
• How long it takes for a diagnosis to be made, diagnostic tests received, and age at confirmation of diagnosis.
• Types of medical services, medications, surgeries, and therapies received.
• Types of clinics and healthcare professionals who care for people with muscular dystrophy.
• How services and treatments affect outcomes and quality of life.
• The progression of the disease.
• Impact of the disease on families and caregivers..." 
• Muscular dystrophy research